Cystinosis is a rare, genetic metabolic condition that affects every cell in a patient’s body. If left untreated, cystinosis can cause irreversible damage to tissue and organs. But ongoing treatment now makes it possible for people to manage cystinosis.
Community and events
You’re not alone in your journey through life with cystinosis. Learn more about the community of people living with cystinosis, and see if there are any cystinosis events coming to your area!